The interview with the caregiver
collected information on the care recipient’s need for
assistance, on the range of people available to provide assistance,
on their use of supportive services, and on the impact of caregiving
on the caregiver’s health and lifestyle.
Content of the CSHA Caregiver Interviews:
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Themes
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Topics
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Examples of Data Collected
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CSHA 1
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CSHA 2
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CSHA 3
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Identity of Caregiver
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Demographics
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Age, sex, marital status
Relation to subject
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Social Situation
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Subject's living arrangements
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Numbers of children, relatives and
others in the home
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Other friends or relatives less than
an hour away
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Caregiver's living arrangements
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Numbers of children, relatives and
others in the home
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Other friends or relatives less than
an hour away
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Help Given
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14 ADLs (1)
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Subject's functional level
Who assists them?
Time spent
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Care management
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Can subject be left alone?
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Scheduling appointments, etc.
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Service Use
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List of nine community support services
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Used?
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Who provides?
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Who pays?
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Satisfaction?
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Why not used?
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Unmet needs
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Other services needed?
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Attitudes
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Attitudes
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Physician
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Subject's visits to doctor
Visits to hospital
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Subject's Behaviour
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Behavioural disturbance
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Dementia Behaviour Disturbance scale
(2)
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Impact on Caregiver
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Employment
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Changed jobs?
Reduced work?
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Burden
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Zarit scale (3)
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Depression
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Center for Epidemiologic Studies Depression
scale (4)
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Health
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Chronic conditions
Self-rated health
SF-12 (5)
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Caregiver's service use
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Physician and hospital visits
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Institutional admission
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Plans to admit the participant to
an institution?
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Positive aspects
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Satisfaction with caregiving
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References:
(1) Fillenbaum, GG, Smyer, MA. (1981). The development, validity,
and reliability of the OARS Multidimensional Functional Assessment
Questionnaire. Journal of Gerontology, 36, 428-434.
(2) Baumgarten M, et al. (1990).
Validity and reliability of the Dementia Behaviour Disturbance
Scale. Journal of the American Geriatrics Society, 38, 221-226.
(3) Zarit SH, et al. (1980). Relatives
of the impaired elderly: correlates of feelings of burden.
Gerontologist, 20, 649-655.
(4) Radloff LS. (1977). The CES-D:
a self-report depression scale for research in the general
population. Applied Psychological Measurement, 1, 385-401.
(5) Ware JE, et al. (1996). A 12-item
Short-Form Health Survey: construction of scales and preliminary
tests of reliability and validity. Medical Care, 34, 220-233.
 Click
here to download the Caregiver Questionnaire (PDF format 171KB)
 Click
here to download the Caregiving Power Point presentation (171KB)
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