At CSHA-2 and CSHA-3 we interviewed
a close relative of study participants who had died. The purpose
was to obtain information on the major study outcomes of date
and cause of death, and institutional admission. Additional
purposes included collecting information on the pattern of
decline during the last three months of the person’s
life, and information to permit estimation of their ante-mortem
cognitive status.
The decedent questionnaire consisted
of four parts:
1. A vital statistics section included date, cause
and place of death;
2. The 14 OARS ADL and IADL questions, designed to
indicate the subject's physical and mental ability to function
three months prior to death;
3. A subset of 15 questions from the CAMDEX and the
Present Functioning Questionnaire covered symptoms of dementia.
These were used in an algorithm designed to estimate the likelihood
that the person had dementia;
4. A residential history, to record whether the subject
had been placed in an institution or had remained in the community.
In addition to the interview, the
date and cause of death were obtained from the Registrar of
Vital Statistics in each province, and the results are included
in the data set, where the underlying, immediate and antecedent
causes of death are coded according to the ICD-9.
 Click
here to download the decedent questionnaire (PDF format 108KB)
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